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National Renal Data Set


Improving Kidney Care through Information

The National Renal Data Set (NRD) provides the specification of information to be collected by the NHS to support implementation of the National Service Framework for Renal Services. This information will be used by kidney care services to assess their achievement of the quality standards and to improve kidney care for patients.


Status

The NRD has been approved as a full operational information standard by the Information Standards Board (ISB) for Health and Social Care. The data set is mandated for collection by the Department of Health, sponsored by Dr Donal O'Donoghue, National Clinical Director for Kidney Care.

Changes to the data set were approved by ISB in November 2010. The data items and the mandation dates are specified in NRD v2.2 which is available from the document download section of this web page. Additional guidance documents are also located there, including a conformance checklist. This is a tool for services and systems suppliers to use to assess their state of readiness for collection of the data.

The data set extends the existing collections of the UK Renal Registry, UK Transplant and the British Association of Paediatric Nephrologists. Data collection and submission of the NRD will be included within these existing collection mechanisms.


Background

The data set was developed in partnership with the following organisations;

  • The Renal Association UK Renal Registry
  • NHS Blood and Transplant
  • British Association of Paediatric Nephrologists
  • British Renal Society
  • British Transplantation Society
  • National Kidney Federation
  • English Renal Units 

Data Set Documentation

xls icon National Renal Data set v2.2 (xls 832KB) [828kb]

Reference Material

pdf icon NRD Human Behavioural, Organisation and Technical Guidance v2.3 (pdf 393KB) [389kb]

pdf icon Business Requirements (pdf 286KB) [286kb]

pdf icon Information Requirements (pdf 150KB) [150kb]

xls icon Data set Conformance Checklist (xls 487KB) [489kb]

SNOMED Clinical Terms are being developed to support the implementation of this data set. These will be included in the UK extension of the SNOMED CT licence and will be published via the UK Terminology Centre website (external)

Please note: this requires registration to validate use under the terms of the SNOMED CT licence.

If you have any have any questions about data item definitions, value lists or any other general questions about the data set please contact us.

Email enquiries@hscic.gov.uk Please state 'enquiries' in the subject line.

Alternatively, please call our Contact Centre on 0845 300 6016.

An Information Standards Notice covering the changes will be published by ISB in due course; this will be available via the ISB website (external) and will supercede the Data Set Change Notice 27/2008 has been published via the NHS Connecting for Health website, Data set Change Notices 2008. The Review Of Central Returns (ROCR) licence number for this collection is ROCR/OR/0192/FT6/001.


Contacts

Enquiries can be sent to enquiries@hscic.gov.uk

Please state 'National Renal Data Set' in the subject line.

Alternatively, please call our Contact Centre on 0845 300 6016.

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