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Mental Health and Learning Disabilities Data Set

The Mental Health and Learning Disabilities Data Set (MHLDDS) contains record-level data about the care of adults and older people using secondary mental health, learning disabilities or autism spectrum disorder services.


What is the Mental Health and Learning Disabilities Data Set?

The Mental Health Minimum Data Set (MHMDS) was renamed Mental Health and Learning Disabilities Data Set (MHLDDS) following an expansion in scope (from September 2014) to include learning disabilities and autism spectrum disorder patients. To coincide with the renaming of the data set, version numbering was reset, thus the initial version of the MHLDDS is referred to as MHLDDS v1.0.

Version 1 of the MHLDDS was approved as an Information Standard in January 2014 (ISB 0011 Amd 3/2013). Subsequent to this release a small number of errors have been corrected (such as correcting the presentation of the HoNOS-LD tool) and version 1.1 has been issued.

The MHLDDS is an approved NHS Information Standard that delivers information on people in contact with specialist secondary mental health, learning disabilities and autism spectrum disorder services that is:

  • robust
  • comprehensive
  • nationally consistent 
  • comparable

The MHLDDS is unique in its coverage, because it covers not only services provided in hospitals, but also in outpatient clinics and in the community, where the majority of people in contact with these services are treated. It brings together key information from the mental health, learning disabilities or autism spectrum disorder care pathway that has been captured on clinical systems as part of patient care. During processing, this information is compiled into a single patient record.

Submission of MHLDDS data is mandatory for NHS funded care, including independent sector providers. As part of scope changes introduced in Amd 3/2013, data for clients who are wholly funded by any means that is not NHS, can now be submitted on an optional basis.

Organisations make regular MHLDDS submissions to the Bureau Service Portal on Open Exeter.

Read how to submit data to the MHLDDS.


How is the Mental Health and Learning Disabilities Data Set used?

MHMDS supports a variety of secondary use functions such as:

  • commissioning
  • clinical audit
  • research
  • service planning
  • inspection and regulation
  • monitoring government policies and legislation
  • local and national performance management and benchmarking
  • national reporting and analysis

The MHLDDS is the data source used for the implementation of Mental Health Currencies and Payment (formerly PbR). As such, the Mental Health Care Clusters, ISB 1509, and Mental Health Clustering Tool, ISB 1078, Information Standards are implemented through the MHLDDS. MHLDDS is also planned to be the future source of the Learning Disabilities payment system once requirements are determined.

MHLDDS statistics are for anyone wanting a comprehensive national picture of the use of specialist mental health, learning disabilities or autism spectrum disorder services in England, including:

  • policy makers
  • commissioners
  • mental health service users
  • members of the public 
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